Malawi Network of People Living with HIV / AIDS
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GIPA  

Greater Involvement of People Living with HIV/AIDS

 
 


There are many reasons why GIPA is important to the response to the epidemic in Malawi:

    At the social level, publicly acknowledged involvement of PLWHA helps reduce stigma and discrimination, and sends a signal to society regarding acceptance and recognition of the importance of PLWHA.

    Within organizations, PLWHA involvement is a powerful tool for breaking down barriers and changing preconceived ideas about PLWHA

    Working with HIV sero-positive individuals on a daily basis, and having a name and face to associate with the concept of “a person with HIV or AIDS” – where previously the association was with a virus or terrible disease – helps people overcome their fears and prejudices, and changes their perception of PLWHA

    Involvement of PLWHA provides a basis for partnership, mutual respect and understanding of people living with and affected by HIV. It breaks down simplistic concepts of "service giver" (that is, the person who is HIV-negative) and "service receiver" (the person who is HIV-Positive).

    Involvement of PLWHA can reinforce an organization or activity by exposing it to the unique perspectives that PLWHA’s direct experience. This reinforcement can be at the level of general morale and team building, or it may include substantive improvements in the way an organization actually works.

    GIPA also has important benefits for PLWHA as individuals. Experience indicates that involvement – especially if it comes after a period of feeling hopeless and depressed –builds up a person's motivation, self-esteem and improves welfare. PLWHA (like everyone else) need to feel valued for what they can offer. Involvement gives HIV-positive people support and can empower them in ways that increase the value of their contribution to the organization’s or activities.

 
What can you do?

You can create opportunity for involvement and active participation of PLWHA by:

• Appointing PLWHA to decision-making or policy-making organs in your organization/programme


• Ensuring participation of PLWHA in the design, implementation, adaptation and evaluation of HIV/AIDS interventions in your organization.


• Engaging PLWHA in HIV/AIDS interventions e.g. caregivers, peer educators or outreach workers.


• Allocating resources for involvement of PLWHA


• Building capacity of PLWHA through training to enable their participation at various levels


• Facilitating the establishment and development of support system for PLWHIA in your organization

• Ensuring that the needs of PLWHA are attended to and their rights respected.

 
 
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